tag:blogger.com,1999:blog-21511680.post114982400092284057..comments2023-06-04T03:37:38.590-06:00Comments on Work in Progress: Tarlov cystWrkinprogresshttp://www.blogger.com/profile/11856828776670191811noreply@blogger.comBlogger50125tag:blogger.com,1999:blog-21511680.post-64075049284136073902021-09-24T15:04:39.392-06:002021-09-24T15:04:39.392-06:00I have be living with Oral herpes for over 4 years...I have be living with Oral herpes for over 4 years now and it has be a big problem for me.I have been looking for solution because i can't leave with it, One day i came across a woman testimony on a forum saying she got cured of her Herpes with the help of Dr OBUDU an herbal doctor from African with herbal medicine. At first i did not believe because i was not sure herbs can really take this virus away,but i have no choice than to give it a try and contacted him with his emails, i explain my problems,.. then he told me not to worry that he will prepare the a cure with herbal mixture and send it to me, i got the medicine after 4 days delivery and i use as instructed. After 21 days when the herb got almost finished, I went to a medical doctor, i did a test and discover that the virus was gone, and my test result were HSV 1%2 negative,i was so surprise and happy! then i wrote Dr OBUDU and thank him for getting me cured from herpes. I advice you to contact this great herbal doctor OBUDU as he have cure for different kinds of diseases.i decided to share this testimony to let others who also suffer from herpes know about this and give hope to others, you can reach him via Email drobuduherbalhome@gmail.com also https://drobuduherbalhome.wixsite.com... WhatsAPP number +2349023428871 <br />Daniela corahttps://www.blogger.com/profile/18271904958358453491noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-35239004280900931262019-09-02T10:37:16.368-06:002019-09-02T10:37:16.368-06:00Did you ever find a good dr near Nashville? I nee...Did you ever find a good dr near Nashville? I need one!Rileyhttps://www.blogger.com/profile/12901510770774117974noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-61545773414223778722019-09-02T10:34:08.930-06:002019-09-02T10:34:08.930-06:00Im looking for a dr in the Nashville area who can ...Im looking for a dr in the Nashville area who can help me determine if my Tarlov cyst is the cause of my severe pain. Any drs you saw that you would suggest? (Also willing to travel in US). Rileyhttps://www.blogger.com/profile/12901510770774117974noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-15954153984326341582016-12-11T22:00:52.312-06:002016-12-11T22:00:52.312-06:00I’m giving a testimony about Dr Osemudiamen the gr...I’m giving a testimony about Dr Osemudiamen the great Herbalist man, he has the cure to all manner of diseases, he cured my herpes simplex virus, though I went through different website. I saw different testimonies about different spell casters and herbalist, I was like: ‘Many people’s have the herpes simplex virus cure why are people still suffering from it? I thought of it. Then I contacted Dr Osemudiamen via email: drosemudiamenspellhome@gmail.com. I didn’t believe him that much, I just wanted to give him a try, he replied my mail and Needed some Information about me, then I sent them to him, he prepared it (CURE) and sent it to me Fed-ex delivery, he gave my details to the FedEx Office, they told me that 2-3 days I will receive the parcel and i took the medicine as prescribed by him and I went for check-up 2 weeks after finishing the medicine, I was tested herpes simplex virus negative. if you are herpes simplex virus patient do me a favor by you contacting him and I assure anyone who is suffering it, your problem will never remain the same again you will be cured. Also Dr Osemudiamen help my sisters husband to cure his HIV/AIDS he was suffering from for the past 3 years. After he cured my herpes simplex virus, then my sister heard about it, she went home to tell her husband about Dr Osemudiamen then her husband emailed him and explained his problem to him. He also prepare herbal medicine and he use fed-ex delivery to sent him the herbal medicine and he instruct him on how he will be using it for 14 days. That on the 15 day of it, he should go and check his self in the hospital and he did as he was instructed by Dr Osemudiamen. To GOD be the glory he was cured of his HIV/AIDS which he was suffering from for the past 3 years thanks to these great man we will ever remain grateful to you Sir indeed might work you did in our families. When you contact him, make sure you tell him that I refer you.. contact him via: drosemudiamenspellhome@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-40539336106189873042014-10-29T05:10:35.169-06:002014-10-29T05:10:35.169-06:007cm cyst here. Causing erosion of the bone. Still ...7cm cyst here. Causing erosion of the bone. Still looking for a competent neurosurgeon in the area. :/Lauren K.noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-90728747498102989812013-05-01T11:31:41.275-06:002013-05-01T11:31:41.275-06:00I am a 46 year old woman who has just been diagnos...I am a 46 year old woman who has just been diagnosed with TC, multiple. I have had back pain since the age of 13, currently I am on medication that is not working for arthritis. The backpain is unbearable and I am sleeping for 1/2 hour stints in the night. I feel everyones pain and frustration as I was told that I was; over weight, or it was all in my head. Does anyone know of any Doctors in Ontario, Canada?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-65350596414396501162013-04-23T12:19:17.899-06:002013-04-23T12:19:17.899-06:00I have a 3cm Tarlov Cyst at my S2 level. This was...I have a 3cm Tarlov Cyst at my S2 level. This was over a year and 1/2 ago. The pain is now 24/7 with no relief of medication. It is now affecting my right abdominal area, hip, thieg and shin. I am also dealing with (since 2007) Fibromyalgia, Lupus and Sjogrens ss/b. I am at a loss. In May 2012 I had Cervical Spine Surgery for C4-C6 levels and now have a plate with 6 screws. This was because of herniated disc with cord impingement. My neurosurgeon stated to me that my L4-L5 are also causing my pain in the lower back. So with the Tarlov Cyst and my Lumbar impingements are a major issue. However he wants me to heal from my cervical spine surgery. It will be 1 month come this May 2013. I am scheduled May 1st to further my medical conditions at Cleveland Clinic, however I am getting very depressed. It is not a pleasant lifestyle to live being in pain 24/7 and all you want is relief! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-16846457378561001042013-01-15T23:37:36.443-06:002013-01-15T23:37:36.443-06:00I was diagnosed with Tarlov Cysts in my lumbar sac...I was diagnosed with Tarlov Cysts in my lumbar sacrum area. I have a lot of low back pain,abdominal pain, and my right leg cramps all the way down to my feet making my toes draw as if they are having some sort of stroke. I can't sit or stand for long periods of time. I have been to 3 different neurosurgeons and none have been any help to me. I am now just seeing my regular physician and he has me on 3 different medications that I am finding a little relief but the discomfort is still there. I am taking Gabepentin 300 mg 4 times a day. Meloxicam an antiaflammatory, and sevella that works simular like Gabepentin. I am still fighting for my disability. I hope this is some help to others out there because I know the feeling. Amandanoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-70324172115770019852012-05-29T15:08:20.982-06:002012-05-29T15:08:20.982-06:00I was first told i had "tarlovs after almost ...I was first told i had "tarlovs after almost 5 yrs of back pain. Had a new MRI a few weeks ago the largest is now 3.7cm x 2.5 some others over 2cm. I can empathasie with many of you. some orthopaedics think they do not cause pain... I also have disc degeneration. saw a spinal specialist today he said my cysts are on the large side but will not touch them he said there is much controversy and risk with them. He will not entertain touching mine so I am now back interent searchign in the hope that some one is there somewhere to help. My legs have given me awful problems. calf ruptured 3 times in 2 years currently back in plaster again. my friend said i looked like my leg had been tasar gunned after seeing the spasm shoot down it. two days later the calf ruptured going to the front door. 50 but want to enjoy time my grandchildren not spend most my time in wheelchair or bedriddenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-45897304048821935222012-01-11T10:40:43.499-06:002012-01-11T10:40:43.499-06:00Hi, I am quite shocked, I firstly was told that I ...Hi, I am quite shocked, I firstly was told that I have two fibroids (golf ball size), today i had a MRI scan done and they found tarlov cysts on S1 and S2, I have had terrible headaches, especially when I sit, I read through the comments, and came across someone who is taking Amitriptyline 25mg, and it is so stange, because I went to the doc a million times about my headaches and stiff neck and she prescribed it to me, as well, I took it for a while but stopped using it, but i am definitely taking it again, it helped a lot with the headaches. I have had 4 times in my life when I have had an exploding head syndrome (feels like someone hits you with a baseball when you turn your head) and i actually fall down from it it is an electric charge going through your head. I was terrified of the fibroids, I havent had children, and in SA they just want to do a hysterectomy on you, now I have a lot more to worry about. Anyway, best i find a neurosurgeon. GwendieGwenhttps://www.blogger.com/profile/14644286470519705632noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-22977909368275180712011-10-25T23:52:54.825-06:002011-10-25T23:52:54.825-06:00hello i have a tarloc cyst too..cab u help me what...hello i have a tarloc cyst too..cab u help me whats the treatment u been thru for pain freee..thanksAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-31447687086223733942010-12-01T20:00:33.967-06:002010-12-01T20:00:33.967-06:00Hello Fellow Tarlovians! Hopeful News to follow:
V...Hello Fellow Tarlovians! Hopeful News to follow:<br />Very sorry to hear of your life-changing (read: life-ruining) pain. I am 26 and searched forever to find our what the hey was wrong with me...dr after dr with some incorrect diagnosis and a bunch of prescriptions to match. I had been bed ridden, only getting up to pee and eat, for about 7 months when I finally got a correct diagnosis from my homeopathic chiropractor with a saccrum MRI. It was soooo horrible to read everything on the Internet and scary...I too became very suicidal. However, Partly b/c I don't have insurance and mostly b/c I generally debunk western medicine, I had to figure out another route (no one can be expected to live with this kind of mind blowing, depressing, consuming pain!). I decided that perhaps I had caused this cyst to appear through enviromental factors (sorta like a tumor) and so perhaps I could get my body to take care of it. Which leads me to where I am now. I have been following the Crazy, Sexy Diet by Kris Carr (watch her documentary Crazy, Sexy Cancer....so good) for about a month now and my pain is almost completely gone...it is such a miracle that I hate to even write about it now for fear of jinxing myself! It is not an easy regimen to follow but neither is being bed ridden and dead behind the eyes. The pain started going away slowly and then one day it didn;t come at all.. Now it isn't gone b/c if I walk for too far it starts to flare up but I can do everyday activities again without pain. I am hoping that if I continue I can get my body to absorb or at least stabilize the cyst (ie make asymptomatic). I encourage everyone to give thsi a try before surgery....just in case it could get rid of these gosh darn things! Write if you need me: damonscheryl@yahoo.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-71516569686399585582010-11-16T01:49:45.905-06:002010-11-16T01:49:45.905-06:00I live in Australia and I was diagnosed with a sym...I live in Australia and I was diagnosed with a symptomatic Tarlov Cyst last year after over 12 months with an extremely sensitive tailbone ..Im still waiting to see a neuro surgeon and symptoms are getting worse , at the moment my left hip feels really tight and I have pain in my right thigh that runs down into my foot I also get numb butt and cramps in my legs , constipation and headaches , all starting to get me down lately while I play the public hospital waiting game .Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-71068531129405582872010-07-19T12:54:07.856-06:002010-07-19T12:54:07.856-06:00Drs. at Mayo Clinic still think that Tarlov cysts ...Drs. at Mayo Clinic still think that Tarlov cysts do NOT have any symptoms. I had my surgery in Kansas City,MO. last Oct. and I woudn't hesitate to have it done again if I were to have other cysts become enlarged. I am able to change my bed linens without excruciating pain and do gardening and pick wild berries. I was just diagnosed with lupus and do have occasional aches and pains here and there but at 76 it's a given to some extent. When my MRI showed the Tarlov cysts I researched them on the internet and found the Tarlov Institute in Kansas City, MO. and contacted them. I sent my MRI disc and the next thing the specialist called me. He explained the findings as he had the disc in front of him on the computer. He has done a follow up MRI in depth discomfort analysis at 3 mos, 6 mos and then at a year in Oct.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-39097852750855486712010-07-12T19:50:59.810-06:002010-07-12T19:50:59.810-06:00Only a medical practitioner looking for business c...Only a medical practitioner looking for business could call this a "nice topic". It is a very unfortunate topic, but one that is very crucial for discussion. This is not a condition that chiropractic is helpful for. My unilateral radiculopaty became bilateral after visits to a chiropractor. Others have also had trouble with chiropractic. These cysts do not like to be pushed or messed with.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-68198573325319358252010-01-19T17:51:51.475-06:002010-01-19T17:51:51.475-06:00I would really like to find out more about doctors...I would really like to find out more about doctors working with Tarlov Disease. I am a 58 year old female and have been experiencing pain in lower back, butt and down my right leg for over a year now. Had an MRI and showed I had two or three cysts on my lower spine. My Rheumatologist said I did not have arthritis or spinal stenosis. He said I have a slight herniated disc, but didn't think that was causing all my pain. Went to see a Neurologist today and asked him about Tarlov cysts. He said that they don't ever cause problems and that I have arthritis in the spine and wants me to have steroid injections. Now I am really confused since the arthritis doctor said I didn't have arthritis but neurologist says I do. I seem to have a lot of the symptons of Tarlov, but don't know where to turn. Any suggestions??sefour51noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-46670128830615858462010-01-11T01:04:07.488-06:002010-01-11T01:04:07.488-06:00Dear Flipp25701,
Your Talov is probably not the ca...Dear Flipp25701,<br />Your Talov is probably not the cause of your pain you need to see a Neuro-Surgeon and or a Orthopedic Surgeon, I too had severe lower back pain and a Tarlov was shown to be present but these remain dorment. Nine times out of ten they are not the problem,my surgeon wouldn't touch it, I have had Spinal Fusion and I now have NO pain at all, I have a quality of life which I didn't have for 18mths But hey I'm alive and active, Hang in there and fight till you get what you deserve!deejoannenoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-1290958625475515322010-01-11T00:57:03.123-06:002010-01-11T00:57:03.123-06:00Dear Flipp25701,
Your Talov is probably not the ca...Dear Flipp25701,<br />Your Talov is probably not the cause of your pain you need to see a Neuro-Surgeon and or a Orthopedic Surgeon, I too had severe lower back pain and a Tarlov was shown to be present but these remain dorment. Nine times out of ten they are not the problem,my surgeon wouldn't touch it, I have had Spinal Fusion and I now have NO pain at all, I have a quality of life which I didn't have for 18mths But hey I'm alive and active, Hang in there and fight till you get what you deserve!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-37340855719487279602010-01-10T19:38:53.644-06:002010-01-10T19:38:53.644-06:00I have Tarlov too,.. I asked how many i had, They ...I have Tarlov too,.. I asked how many i had, They said to many to count. I cannot find a doctor who will adress my pain, or take me seriously when i tell them Im at the point of suicide due to the pain and depression cuz my life now sucks !!! I have DDD, scoliosis, 1 broke disk, 2 hernated and disk debree on my L4 nerve and protrusion of a disc in my thecal sac. I lose control of my bowels and bladder, have severe muscal spasms in my vagina, legs and feet. I lose my balance alot and I have problems with my memory, spelling and just cant focus. I have waited for almost 1 year now for my disability ruling,..hopefully i will get it soon because the day i get my check im headed to tenn where the tarlov Foundation is,.. i will try one more time to get a doctor to help me,..if I cant find a doctor or get refused disability, well Im calling it a life,.. Im out of here. Wish you all the best and thanks for letting me vent.FLIPPERS CORNERhttps://www.blogger.com/profile/04737385294081541204noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-63727072946433278222010-01-07T19:27:02.102-06:002010-01-07T19:27:02.102-06:00hi my name is Erin. Yes tarlov cysts is the cause ...hi my name is Erin. Yes tarlov cysts is the cause of my pain. I thought my pelvic pain was cause of endometriosis and scar tissue. I once had. I had hyster 07. I had lapros wed jan 6. I dont have it. I talked to dr f in kansis city, mo about 3 mos ago. he said he pretty sure the tarlov cyst is the cause of my pelvic pain. He said it is very large and a small one next to it. I talked to another orthep spine surgeon and he seen the mri of pelvic and he agrees causing my pelvic pain. This dr didnt believe in them but once he seen it he knew it was the cause. I am going for colonscopy monday. I will decide what I am going to do after this. orthepedic dr says dr f was is better than dr longs way. dr f takes it out and puts fat in it. like any surgery it is risky. I know if I leave it alone I can be in more pain than ever. I am 32 so what will I be like at 50 or 60. I hear claudine stories and they scare me. I know I have to do what is right for me. I will pray and hope for the best decision. I know I rather not have this. <br /><br />On facebook erin roque brennanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-58128095285835543392010-01-06T19:21:36.431-06:002010-01-06T19:21:36.431-06:00Oh Mary, I was just glancing up the line. Are you ...Oh Mary, I was just glancing up the line. Are you the same Mary from a few comments up? If so, you have explained about your left sided symptoms. I do understand about those!<br />Patpatnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-78633078050092807312010-01-06T19:15:55.864-06:002010-01-06T19:15:55.864-06:00Mary - what surgery did you have? And what size a...Mary - what surgery did you have? And what size and location were your cysts? What were your pre-surgery symptoms - and for how long? Have they all been alleviated and if not what is your status? What medication are you on now? <br />Patpatnoreply@blogger.comtag:blogger.com,1999:blog-21511680.post-21482080788235672272010-01-06T11:19:29.601-06:002010-01-06T11:19:29.601-06:00I just read the posted comments, which I should ha...I just read the posted comments, which I should have read first. There are only 5 Tarlov specialists in the U.S. according to information I could find on the internet. 1 in Kansas City MO., 2 in Maryland, 1 in California and 1 in the State of Washington. For me Kansas City MO> was the closest at 800+ miles. Good luck to Kathryns mother in finding and being able to get to a Tarlov specialist.Unknownhttps://www.blogger.com/profile/14666503343652259096noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-58267179973251628412010-01-06T11:11:22.629-06:002010-01-06T11:11:22.629-06:00I went to Kansas City, MO. and had Tarlov cyst sur...I went to Kansas City, MO. and had Tarlov cyst surgery and also had my spinal stenosis taken care of by Dr. Frank Figenbaum. I had to lie flat for 24 hours after surgery, then I got up and walked to the bathroom without any difficulty and recovered very well. I was in the hospital for 4 days. Discharged on a Sat. and was out walking around the Kansas City Zoo on Tues., I week post surgery. It will be 3 months on the 13th and I will have my first post op MRI to check on things. Then a 6 month MRI and then a 1 year MRI. I had to make all my own arrangements for this surgery. Thank goodness for the internet. I have a new local M.D. and she is in my corner. Now I have to address my migraines.Unknownhttps://www.blogger.com/profile/14666503343652259096noreply@blogger.comtag:blogger.com,1999:blog-21511680.post-68225328318626777962010-01-05T22:35:06.401-06:002010-01-05T22:35:06.401-06:00I have bilateral Tarlov cysts at the S3 level. The...I have bilateral Tarlov cysts at the S3 level. The right is small and posterior and the left is Anterior large - 4.7 cm located in my lower abdomen. I have a herniated disc at S1 and bulged discs all the way up through most of the L region. And of course scoliosis throughout this area to top it off. At T10 I have a anterior ossification resulting from a past growth of some sort. I'm a nurse and have been on disability for 2 years. I've been suffering extreme pain in my lower back and lower abdomen with symptom in my lower extremities. And upper abdominal symptoms resulting from the ossification putting pressure on adjacent nerves at T10. I've been to 2 neurosurgeons and neither knew nothing about the Tarlov. And with the surgical treatments now available, none seem even an option. Is pain management the only real alternative for us who suffer with this disease? Have any of you heard of any other new surgical procedures?<br />I'm not really interested in laminectomy or fenestration etc.<br />From all that I've read, the risks outweigh the benefits by a long mile. Also, as far as pain management goes, have any of you heard of etanercept delivered by perispinal administration for chronic back pain? Dr Tobinick is at the Institute of Neurological Research in Los Angeles. Or any other longer term pain management. (I've on 40 mg hydromorph capsules BID and dilaudid prn and topirimate. I've tried fentanyl patches as well). Any input would be helpful. Pat<br /><br />1/05/2010 10:14 PMpatnoreply@blogger.com